SFSD or Bust
Hi, my son has/had torticollis, it is mostly resolved now. We caught it early around four months and only had to do PT, no helmet and I have not heard of the collar. He still tilts to the right some and is a little tight on that side but has full range of motion. I am sorry your little one is having a hard time with this.
Try this link: http://community.babycenter.com/groups/a52465/plagiocephaly_flat_head_parents
They may be able to help. Let me know if the link doesn't work for you. I am pretty sure the new site is open to the public now.
kama
I am so sorry he is not liking it. I am sorry that I can not offer any advise, but if you need to talk, please feel free to call me.
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So i was wondering if anyone out there has a baby with torticollis. If so does anyone out there have any experience with the TOT collars? I posted a link for those of you that may not know what I am tlaking about until you seee it. It has pics of the TOT collar and explains torticollis.
http://www.symmetric-designs.com/the-tot-collar-for-torticollis-treatment.html
What was your experience like? How long did you use it for? What percentage was the head tilted to and can you see any of it now? Even though we have Birth to 3 and Physical therapy twice a week my son is having issues with his torticollis. The PT is considering the TOT collar and I am having a VERY hard time with that. I had no issues with the helmet for his flat head (caused by the torticollis) but he SCREAMED until we took the collar off when we tried it on just so the PT could show me what it was.